Dealing with severe vision problems

This is a rather long self thought I had with my self, and it involves vision problems. Its not your common nearsightedness where you can just wear glasses and boom, problem solved. It is much more serious so bear with me here.

So I have this condition called Amblyopia, where in childhood my brain kind of chose my left eye to be dominant, and by consequence neglecting my right eye's image, to the point that everything it sees is blurry, even with glasses.

The doctor told me that this had to be corrected when i was young, ideally before the age of 6. Of course, I didnt realize or remember my right eye being bad until after a surgery I had when I was 8. Of course, I never remembered my right eye as being any good, so it sort of stayed the same to this day, which sees me as 16 years old and otherwise physically healthy.

Basically what this means is, that unless some Vision Therapy program works for older people with the problem(there has been one advertised, but it is Singapore based and I dont know how effective it is)
Anyways, until a proven Vision Therapy program emerges, or doctors come up with a magical treatment,(of which Stem Cells could be involved) I'll be stuck with one good eye(my left), whose vision is almost perfect with or without glasses. And one bad eye(my right), whose vision is so bad that its almost legally blind, with or without glasses. Again, this is because the condition involves the brain rejecting the right eye's image at an developmental age(2-6 years old.)

I honestly didnt care all that much that my right eye's vision was really bad until a couple of weeks ago, where a harsh reality smacked me dead in the face. I realized that because my right eye's vision was unlikely to improve to usable conditions, and because I can only depend on my left eye, if anything happens to my left eye, I’ll be practically blind.

Ive talked to several friends and peers about this issue, and they all pretty much said “Its not the end of the world, at least your not completely blind, or have mental problems, or are missing arms/legs.”
And to them, I responded “At the same time, I could’ve easily been perfectly healthy with no problems.”

So because of my realization about my eyes, I have gone into a depressed mood. Not clinically depressed where I’m borderline suicidal, but more of a state of mind where I find it very hard to enjoy things. Like I’d be watching some comedical character (like Johnny Drama from Entourage) I’d be laughing, but then I’d remember that I only have one good eye and it sort of kills the fun.

Some other thoughts I had about this is how big of a factor it plays into my athletic and recreational life. I play basketball, and every time I miss a shot or something like that, I can’t help but think that if my right eye were better I would focus on the rim better. I also play video games, mostly shooters, and every time I choke in a game like Halo 3, I also go back to the thought of if I had 2 good eyes I would perform better.

This is not to say I flatout suck at basketball and Halo 3, in fact quite the opposite but Im just asking is my visual condition a limiting factor to how good I can become. Surely, I’ve encountered a few people who are in the same boat as me(not in real life, I cant just go up and ask someone is your eye messed up. Rather, I go to forums and had a lot of responders there.) So they responded, yea it sucks, but you have to learn to adapt and soon it wont be so bad.

Then I think, well I wouldn’t have to adapt if I never had it, and out of everyone, why me?
 
Hmmm.
I have an uncle who's blind in one eye; he's still able to do normal stuff.

Don't let your hopes down; I'm sure that given the increase in medicine over the last century, ophthalmologists (or scientists, whatever) will be able to fix this issue soon.

You could go pirate and wear a patch :)
 
Hmmm.
I have an uncle who's blind in one eye; he's still able to do normal stuff.

Don't let your hopes down; I'm sure that given the increase in medicine over the last century, ophthalmologists (or scientists, whatever) will be able to fix this issue soon.

You could go pirate and wear a patch :)

But what if it takes another century to develope a fix to the issue?
And plus, its not like a spear went into my eye and they pryed it out.
Just by looking at me, you'd have no way to find out that my right eye cant see well. And I still see out of my right eye to some degree, just really, really bad.

BTW, Im curious to how your uncle became blind in one eye, not to be nosy or anything
 
Waiting for a remedy could take a long time, you're right.

I'm not sure how that happened; i think he might have just progressively lost vision until it went bad.

Some ideas:
1. Check out Stem Cell research. Sounds like it's a nerve issue, not a problem with the actual eye
2. Look into that Singapore research. Experimental stuff can be sketchy sometimes though.
3. Completely remove the eye and install a webcam. Other people are trying it; i would only use that as a last resort though.
4. Wikipedia talks about using topical atropine.

The wikipedia article is pretty neat, I'm sure you've already checked it out, though.
 
So...It seems to me that what you dislike the most is not having full human health or physical capacity. Is that what discomforts you?

I think physical capacity is just a part of our capacity. Mental health is more important to me, especially your ability to make decisions based on experience and knowledge.

But what if it takes another century to develope a fix to the issue?
Be the next Andrea Bocelli. Or master Halo 3 to the point that you can play blindfolded. Make sound based sports.

Be creative!
 
So...It seems to me that what you dislike the most is not having full human health or physical capacity. Is that what discomforts you?

I think physical capacity is just a part of our capacity. Mental health is more important to me, especially your ability to make decisions based on experience and knowledge.

Be the next Andrea Bocelli. Or master Halo 3 to the point that you can play blindfolded. Make sound based sports.

Be creative!

Yes that its exactly what i dislike the most. Seeing other people have 2 eyes, knowing that I have a bad eye.

While its true mental health is also very important, thats no compensation for having an incomplete physical capacity.

Like I said, I couldve easily been given 2 fully functional eyes to work with.
 
Like I said, I could've easily been given 2 fully functional eyes to work with.
But that's not the case unfortunately. What can you do about it? If the answer is "nothing really", then why worry about it?

If you really want to do something about it, you can do some research, ask doctors, scientists, professors, etc., and many other things much better than feeling bad about yourself.

IMO, it's your decision.
 
Well Im asking if you were, for the lack of a better word, cursed with my condition, how would it affect your outlook on life?

Wouldnt you think its unfair how you got it out of all the other people that couldve gotten it?

Wouldnt you feel cheated out of perfect vision at such a relatively young age?
 
Remember that you are still many times more fortunate than some other people. All of us here at least have a computer to access Smogon with...

Some people have nothing at all (think developing nations) and get medical problems as a result.
 
I hate to say it, but your friends are probably right. My advice is to treat your eyes well, and be happier! Its not like you cant see anything.
 
huh I have a very very similar scenario to you. I also am 16 and also have a very serious eye problem, called keratoconus which is like a very extreme version of an astigmatism which causes my corneas to be extremely thin and cone shaped. I can't wear glasses at all and only recently have been able to wear contacts. All of last year they couldn't fit me with contacts because the kind of contacts i needed were still in development so i basically went through life for two years legally blind in one eye and bad vision on my other eye.

I was able to get by because i could actually see pretty well if i squinted really really hard, which was my perpetual state for those entire two years. It was really tough back then and I was pretty depressed about it. I could never read the black board in school and I would sit out of most sports in gym like tennis or baseball that had a small ball because i couldn't really see well enough. I used to have to sit about a foot away from the tv to play video games or something so it was pretty bad. Luckily last year they finally figured out how to fit me with contacts and although they are incredibly uncomfortable, they give me near perfect vision, which is just such an enormous change. My contacts are a major hassle because they are hard lenses and just suck in general but they let me see and that is what is important.

But even with my new contacts my eyes are getting worse really really quickly and soon I won't be able to wear any contacts at all, at which point i need to get cornea transplant surgery in both eyes, which they are predicting for summer of next year. it's actually not as a big a deal as it sounds i mean it's outpatient surgery and everything but it's a still a pretty scary.

So my story hopefully in the end has a happy ending, but in those two full years when I was essentially legally blind, i just sort of learned to deal with it. I talked to all my teachers and they were all incredibly accommodating, they would make the print on my tests double size and guarantee me a seat in the front row. The one thing that always depressed me though was, walking around school, I could never tell who people passing by were until i was like literally right next to them, so half the time i would accidentally not say hello to somebody who i should have and the other half of the time say hi to somebody i had never met, which always ended up being really awkward. But even that wasn't the end of the world.

I too spent a lot of time thinking about how stupidly unlucky i was and how anybody else could have gotten this problem and i could have had perfect vision but really like i'm sure everybody here will tell you, thinking like that accomplishes absolutely nothing. You just need to realize that life is somewhat chance and that means life is not completely fair, everybody just has to make do with the hand they are dealt. Just because you have to overcome adversity does not mean there is a limit to what you can accomplish. Look at somebody like stephen hawking or lance armstrong or soemthing who continued to do incredible things even in the face of crippling diseases.
 
Well Im asking if you were, for the lack of a better word, cursed with my condition, how would it affect your outlook on life?

Wouldnt you think its unfair how you got it out of all the other people that couldve gotten it?

Wouldnt you feel cheated out of perfect vision at such a relatively young age?
Perfection is quite subjective, at least to me.

I also have a friend with keratoconus.

You don't know what might happen in the future. Perhaps we'll all be cyborgs or something.

Your life is not lasting forever, why waste what you already have?
 
But you see, as serious of a condition keratoconus is, it is at least treatable

In my case, no visual aid I wear nor surgery will help make my right eye better, so whereas Danyul could be like, "oh when the contacts are available I'll be alright" or "I'll be OK after the surgery," what is there for me to look forward to?
 
xxflyingsolo07xx said:
...what is there for me to look forward to?

There always hope that some doctor or scientist will come up with a treatment and advance the field. Stem cells look promising for a variety of issues: maybe your problem will fall under that category.
 
There always hope that some doctor or scientist will come up with a treatment and advance the field. Stem cells look promising for a variety of issues: maybe your problem will fall under that category.

Yea but it isnt like Danyul's situation, all he had to do was wait 2 years
Who knows how long it will take before these scientists and doctors make Stem Cells a readily available treatment?
 
Think of the positive side. Think: "I'm brave enough for living with having one working eye through being sixteen" instead of "everyone else has two eyes". Because it really doesn't matter what eyes god gave you, it matters what you have gained from it. Some day you might become some kind of scientist to help with this kind of thing just because you understand the people who have lived through it. Some day you will be able to tell people that you had once only had one working eye, and people will look up to you and say "how did you do it?". Just think of the positives.
 
I think its easy for some of you to say, just think of the positives
But I ask you, If you actually had my condition, would you maintain the same state of mind?

I know Danyul had a horrible experience for 2 years, but How does he feel about it now?

Obviously, Im not going to die because I only have one good eye, but when you have one good eye, and then if something unfortunate happens to it, you're basically doomed whereas if you had 2 eyes, and something happened to one, you'd still have one to work with.

In my situation, If something happens to my good eye, Id have one to work with but it'll be terrible, that I cant depend on it to do any work past walking around with it.
 
if something happens to one of my eyes then i'll have only one good eye left. if something happens to both of my eyes then i'll be blind. if i get hit by a bus then i'll be dead.

i suppose what i'm getting at here is - for lack of a more suitable phrase - shit happens? granted, a little self-pity is an indulgence that we are all guilty of from time to time, but to wallow is unproductive and unhealthy. be grateful for what you have, not bitter for what you lack.
 
I have a currently non-treatable condition and though i'm in no danger of dieing it's caused me a lot of suffering. Despite this i'm not depressed, why? It's because that no matter what happens I can still enjoy the pleasurable things in life. Sitting worrying isn't going to help, my mother should know she's blind in her right one and it's very easy to forget that fact because it never hinders her at all. Learning to enjoy life despite its drawbacks is a part of day to day life.

I'd say that your fear of losing your good eye is quite irrational. What are the odds of an accident happening that targets only that eye? I guess you'll have to find a way get over that yourself.
 
Well M0nkfish, its hard to be grateful for what I have when you realize it can be taken away at any time

And you can do all the protective measures you can, such as wearing sporting goggles, avoid dangerous chemicals and sharp objects, etc.

But then you see the amount of eye diseases that exist and how easily it can happen. For example, how are you supposed to guard against optic nerve disease? And once it happens, I'll be literally legally blind.

I'll say it again, the main cause for my selfpity is what you said yourself as hypothetical examples.

"if something happens to one of my eyes then i'll have only one good eye left."

You cant say nearly the same statement for me, so it puts me more susceptible to blindness than people like you.

I have a currently non-treatable condition and though i'm in no danger of dieing it's caused me a lot of suffering. Despite this i'm not depressed, why? It's because that no matter what happens I can still enjoy the pleasurable things in life. Sitting worrying isn't going to help, my mother should know she's blind in her right one and it's very easy to forget that fact because it never hinders her at all. Learning to enjoy life despite its drawbacks is a part of day to day life.

I'd say that your fear of losing your good eye is quite irrational. What are the odds of an accident happening that targets only that eye? I guess you'll have to find a way get over that yourself.

Again, I apologize for being nosy and you can choose to ignore these questions.

But, what non-treatable condition do you have, is it serious?

And, how did your mother lose vision in her eye?
 
I have Non-epileptic seizures or functional attacks (doctors can't agree on a name). It's a poorly known condition and in my particular case there's no currently known method of treatment that I respond to. The seizures are frequent and usually occur while i'm asleep with it occurring daily during the worst of the winter months. It's not particularly serious but the muscle pain has caused problems with my leg and i've on a few occasions stopped breathing.

As for my mother she was kicked in the head when she was younger. The damage wasn't noticed until it was too late and her eye had to be operated on.

That's all. I hope that satisfies your curiosity.
 
I have Non-epileptic seizures or functional attacks (doctors can't agree on a name). It's a poorly known condition and in my particular case there's no currently known method of treatment that I respond to. The seizures are frequent and usually occur while i'm asleep with it occurring daily during the worst of the winter months. It's not particularly serious but the muscle pain has caused problems with my leg and i've on a few occasions stopped breathing.

As for my mother she was kicked in the head when she was younger. The damage wasn't noticed until it was too late and her eye had to be operated on.

That's all. I hope that satisfies your curiosity.

Im very sorry to hear about you and your mother's unfortunate suffering.
But one more question, even after operation, your mother's vision in the affect eye could not be saved?

And this is what Im talking about. People who are cursed with negative conditions and diseases, and people who are involved in accidents.

If either of the two happened to you, wouldnt you think its unfair that you of all people were afflicted with it?
 
I can't remember many details but the operation was to sever the nerve to prevent more damage or something like that. It was too late to save the sight in her eye.

As for it being unfair I can't really say it is. In hindsight things could've turned out better but that's the case for nearly everything. There's no point sacrificing happiness because of the has beens a could've beens. You learn to deal with it and through your suffering you can really begin to appreciate life a bit more and being to see things in way someone who was healthy would have trouble seeing. It might not make up for it all but it's a gift none the less.
 
Before I go into anything, I just want to say that I may be a little blunt sometimes, so just keep in mind I'm not trying to sound mean or anything.

Really, I think you just need to get over it. Sure, losing vision in one eye sucks. And sure, some accident could happen and you could lose vision in the other eye. But guess what? You could also have an accident and die. How do you know your next car ride won't be your last? How do you know you won't trip down the stairs and break your neck? My point is, quit worrying about what might happen. What happens happens, if there's nothing you can do about it, then there's no need to even think about it.

Also, quit saying it's 'unfair'. Life's not fair. Now, I'm a fairly positive thinking person, so I'm not trying to paint some bleak picture of the world where everyone is evil and looking to hurt you or abuse you or something like that. I'm just saying that you can't get so worked up over 'unfair'. You also need to drop the 'Why me?' attitude. If you can ask why you of all people have this disease, then can I ask why me of all people was not born into a rich or family? Or maybe why my IQ isn't 200?

Furthermore, there's plenty of people far worse off than you. Think third world countries, or people who are totally blind. I'm not saying you shouldn't ever have the right to some self pity, that's something we all do from time to time, it's just that once you've gone and felt bad for yourself, you gotta be able to snap out of it and get back into the real world.

To sum up, I think you're simply making too big a deal of it all. Yea, it sucks, but whatever happens happens. No use fretting over it.

Just wanted to add again I'm sorry if that came off harsh, that's certainly not how I intend it.
 
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